The website www.CongenitalTTP.com was formed in June of 2008 to connect with those affected with Congenital Thrombotic Thrombocytopenic Purpura (TTP). Our story is only one of many and we are doing what we can to reach out, get acquainted with and become a resource for others. Ten weeks after our daughter was born she was diagnosed with this very rare disease. After realizing that there are limited resources available to families affected by this disease, we decided to launch this site. We hope youâll find it useful. www.CongenitalTTP.com
