MPS VI is not a joke. It is a devastating genetic
disease affecting 1 in 300,000 live births in America.
Shafon Faith Seeden is one of them…an 18 year old girl
who wasn’t suppose to live this long but who continues
to triumph over seemingly unbeatable obstacles.
The Seeden family is very secure in their faith in God,
and each day the hope of Shafon living a regular life
becomes more of a reality…or does it?
Shafon: An MPS VI Story is a documentary that explores
the many trials that one young lady must face each day. What we take for granted, she looks at with wonder.
